When a Family Member has Mental Illness

Mary and Sam raised three children and in 1991 felt proud and relieved when Paul, as his older two siblings had, graduated from high school and entered college. A year later Paul was diagnosed with schizophrenia and their lives changed forever.

As Mary and Sam often point out, their experiences with Paul are not unique. Each year millions and millions of Americans have family members who are diagnosed with a mental illness and a roller coaster of emotions ensues. Sam and Mary say that their initial reaction was denial, believing that Paul had just been overly stressed by academic demands and could be back on his feet in no time with the proper love and care. When they could no longer deny the illness, they felt angry, embarrassed, and ashamed. Embarrassed by how they felt others' would react, they kept Paul's condition a secret. Outwardly they asked each other, "How could this have happened in a normal, happy family? What have we done to deserve this tragedy?" But only inwardly did they dare entertain their most unbearable fear; that somehow they had caused this illness in their son.

This family's journey had been marked by mountains and valleys, hope and despair, and always a desire to help others in similar circumstances. I pass along their wisdom, as well as the wisdom of many other families who have loved ones with mental illness.

  • Avoid the trap of shame and isolation. If there was ever a time to reach out for support and a listening ear, it is now. In the past, families have protected their loved ones from the damaging effects of the stigma of mental illness; fewer families must resort to those measures nowadays. Fortunately, the negative stigma has drastically changed - research and the development of new and more effective treatments have changed the concept that families or the individuals themselves are to blame for brain disorders.
  • Develop an attitude balanced with realism and hope. Psychiatric research has proven that recovery from mental illness is possible. However, each person has a different rate of recovery. It is important to accept the varying degrees of recovery and to never give up on your loved one's journey to mental health. Convey this balanced outlook to your loved one. To avoid relapse and promote recovery, maintain a low-key environment. An overly watchful and intense eye, or expressing excessive concern or excessive enthusiasm, can be as stressful as rejection or conflict.
  • Be sensitive to the needs of all family members. Avoid allowing the mental illness to be the focal point in the family and avoid lowering your expectations of the loved one with mental illness. Lowering your expectations or making excuses for inappropriate or disrespectful behavior is, in the long run, most unkind; it sets the individual up for outside rejection and provides affirmation for negative stigma. In addition, it sends the message that you don't have much faith or hope for the person.
  • Take care of yourself! Get your own life going again. Develop a program of self-care (e.g., sleep, nutrition, exercise, fun, and random acts of kindness to others) and follow it. Say the "Serenity Prayer" when things seem overwhelming. Above all, remember that no one is to blame for the illness.
  • Learn everything you can about mental illness and particularly, the symptoms associated with your loved one's disorder. Be aware of warning signs that may signal a downward turn because early intervention is often vital. We will soon offer a Family to Family program in Washington County. This is a free 12-week course for family and friends of individuals with serious mental illness and is taught by trained NAMI (National Alliance for the Mentally Ill) family members. This course offers support to family members and education about mental illnesses and their treatment, coping skills, and advocacy skills. A recent scientific evaluation of the program by the University of Maryland School of Medicine and the Veterans' Administration showed that participants gained a greater understanding of mental illness, coped much better, worried less, and felt newly empowered to advocate for better treatment and services for their loved one. Sam and Mary teach this course in a different Ohio county and feel that it saved their lives. If you would like to be informed of the finalized plans for the Family to Family course, please call me at (740) 374-6990.

If you have a family member who has a mental illness, there has never been a better time to gain solid educational information and support. Reach out. Become informed and become an advocate. Your support may make a powerful difference to the many families who have walked a mile in your shoes.

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